Wednesday, October 24, 2012

Afghanistan shrine treats mental illness

At Afghan shrine, ancient treatment for mental illness


By Kevin Sieff, Wednesday, October 24, 3:00 AMThe Washington Post JALALABAD, Afghanistan

— No one here knows the man whose left leg is shackled to the wall of cell No. 5. Last week, he finished tearing his mattress to shreds and then moved onto his clothes, ripping his shirt and pants off before falling asleep naked.

“He’s insane,” say the villagers who have come to gawk at him. “He doesn’t know whether he’s in this world or another.”

“He’s getting better!” said Mia Shafiq, the man responsible for his recovery and the one who shackled him to the wall of a shrine in this eastern Afghan city.

The man’s brothers drove him here from southern Kandahar province two weeks ago, drawn by the same belief that has attracted families from across Afghanistan for more than two centuries. Legend has it that those with mental disorders will be healed after spending 40 days in one of the shrine’s 16 tiny concrete cells. They live on a subsistence diet of bread, water and black pepper near the grave of a famous pir, or spiritual leader, named Mia Ali Sahib.

Every year, hundreds of Afghans bring mentally ill relatives here rather than to hospitals, rejecting a clinical approach to what many here see as a spiritual deficiency. The treatment meted out at the shrine and a handful of others like it nationwide might be archaic, but the symptoms are often a response to 21st-century warfare: 11 years of nighttime raids, assassinations and suicide bombings.

For over a decade, Western donors have helped train Afghan psychiatrists, who diagnose many of their patients as having an ailment with a distinctly modern acronym: PTSD, or post-traumatic stress disorder. Mental health departments in Afghanistan are plastered with posters detailing the disorder’s symptoms. Pharmacies are stocked with antipsychotic drugs.

But many of those suffering from the disorder never see doctors or pharmacists. Instead, they are taken on the long, unmarked dirt road, through a village of mud huts, that leads to an L-shaped agglomeration of cells.


Read the rest here




Bob Chiarelli speaks for the first time about his son's schizophrenia

Bob Chiarelli is an Ottawa and provincial politician who is contemplating a bid for the Ontario Liberal leadership. This story appeared today in the Ottawa Citizen.

It's frustrating for me that no comments on this article are allowed, and I assume it is a way of protecting the man and the position from some of the more outrageous things that the public likes to say in comment boxes. If comments were allowed, I would respectfully take issue with the dismal depiction of schizophrenia as a life long brain disorder and chemical imbalance, and with the notion expressed in the article that "medications are so much better" these days - an opinion that is compromised by the mounting evidence about the ineffectiveness of the drugs and the side effects.  I was astonished to read that Chiarelli's son Christopher was on 100 pills a day when he was first hospitalized. 100 pills a day? Did I read that right?

My sympathy is very much with Mr. Chiarelli and his family in their bereavement. My issue is with the continued spreading of pessismism, by the media and through the media, about "schizophrenia." How can one recover or help others to recover when the condition is draped in black cloth? So called "mental" illness is considered after all, mental, and therefore IS particularly amenable to a positive thinking approach.

Casual readers of the Citizen story will come away with the same dismal view of schizophrenia that has the effect of preventing the public at large from learning that, properly understood and handled, "schizophrenia" is not a life-time sentence. (Talk about stigma!) When I read articles like this, I ask myself, what if members of my extended family read this?  Would they assume my son will eventually work full time, get married and lead an otherwise productive life, OR, would they, like the general public absorb the pessimistic message? My guess is the latter.  Unlike me, my family hasn't needed to be up to speed on the latest research and controversies about the label, so they may rely on articles like these to tell them what's what.

I hope that Mr. Chiarelli will continue to work for mental health organizations, and will keep an open mind about the good news coming out of today's recovery movement.

Tuesday, October 23, 2012

National Public Radio on the changing face of psychiatry

Dr. Steve Balt, psychiatrist and editor-in-chief, The Carlat Psychiatry Report, and Dr. Richard Friedman, director, Psychopharmacology Clinic, Weill Cornell Medical College

Copyright © 2012 National Public Radio. For personal, noncommercial use only. See Terms of Use. For other uses, prior permission required.
NEAL CONAN, HOST:

This is TALK OF THE NATION. I'm Neal Conan in Washington. Just about everyone's image of a psychiatrist's office includes a long couch, dim lights and a doctor with a notepad asking: And how did that make you feel? A stereotype, of course, and way out of date at that. Over the past 20 years, few professions have seen more change than psychiatry.

Weekly, 45-minute appointments are largely a thing of the past. Many psychiatrists see patients for 15 minutes, one after another. Instead of listening, they ask a series of questions, write out prescriptions, and refer their patients to a psychologist or to a social worker for therapy.

While some in mental health circles feel these changes are necessary, others worry they hurt both patients and doctors. We want to hear from psychiatrists in our audience today. How has your practice changed? Give us a call, 800-989-8255. Email us, talk@npr.org. You can also join the conversation by going on our website. That's at npr.org. Click on TALK OF THE NATION.


Read the rest of the transcript and listen to the audio link.

Monday, October 22, 2012

Has psychiatry over-reacted to psychosis?

Yesterday, I sat down with my son to discuss his recent difficulties that resulted in his going back on medication, the warning signs - will he be able to recognize them in future? - and observations about what we can do in the meantime to avert future episodes.

I'll get to the title of this post after I meander through the events of this past summer and how they are informing some current thoughts about Chris's troubles of the past ten years.

The latest mini-crisis may have started in June with Chris complaining about not sleeping well. He had finally come off the Abilify in April or May, having tapered over the course of one year from 5 mg down to nothing. His lack of sleep could have been related to going off the drug, and/or, lack of sleep could be something that he always needs to guard against. (Even as a toddler, he put himself to bed, early, which was kind of unusual, I would say.)

To be honest I didn't give the latest professed lack of sleep too much thought, for several reasons. One is that Chris didn't look or act like someone who wasn't sleeping well. He got up early every day like clockwork, he went to bed at a reasonable hour each night, he didn't have bags under his eyes. In September, when he again complained about not sleeping well (there were periods in between when he said he was getting a good night's sleep), I suggested that he ask Dr. Stern for a sleeping pill. The rest is history. Dr. Stern put him back on an antipsychotic within two weeks of his asking for help sleeping.

If lack of sleep is the cause of this latest drama, then Chris's growing lack of self-confidence that I DID observe in September, is a possible by-product. He was becoming downright weepy and talked of himself in very self-deprecating terms. Lack of sleep will do that for some people. For other people, lack of sleep will make them hostile, aggressive, or paranoid. Prolonged lack of sleep can eventually lead to hallucinations.

If you haven't listened to Will Hall's presentation in front of the American Psychiatric Association, please do. Will knows the territory of psychosis very well. In his speech he makes reference to lack of sleep as an under-recognized/under-treated factor in psychosis. Many people claim that they became psychotic following a period of intense sleeplessness. That fact I know well, but then it gets complicated. As Chris pointed out, the psychiatrists when he was first hospitalized talked about the importance of sleep in the recovery process, but they didn't relate it to a possible reason for his becoming psychotic in the first place.
Chris started to go psychotic during his last year of high school, a time of intense academic pressure. He tells me that he drank coffee to keep himself awake into the early hours of the morning. For many people staying up late wouldn't be a problem, but perhaps for Chris, who put himself to bed voluntarily as a toddler, lack of sleep for him means more than just being tired the next day.

My latest effort to help improve Chris's resilience (help him get better sleep to avoid psychosis) was to move him into a bedroom that is much darker and quieter at night, and to keep him supplied with Dr. Hoffer's niacin combination, which also aids sleep.

Perhaps if his psychiatrists at the hospital had focused on lack of sleep as a possible primary cause of his psychosis, rather than merely one of many symptoms of psychosis, his recovery to date would have been more straightforward. Why couldn't he have been treated with a sedative at night, like Joanne Greenberg (author of I Never Promised You a Rose Garden)  was given when she was a patient at Chestnut Lodge in the late 1950s? I suspect the answer may be that today's patients are given antipsychotics during the day (which have a sedating effect), and sent home quickly in order to avoid costly hospital stays. Hospitals are not prepared to be Soterias. Joanne Greenberg spent three years at Chestnut Lodge, where she wandered the hospital during the day conversing with other patients, and saw her psychiatrist once a week. She was unmedicated and quite psychotic, but presumably got a good night's sleep. After three years, she was released from hospital.

I am deliberately hedging my bets here about putting too much emphasis on sleep deprivation as a cause of Chris's psychosis, but I do think it is an area that psychiatry has put too little emphasis on as a possible causative factor for some individuals. Sleeplessness in most people leads to anxiety, lack of self-esteem, aggression, and, in a certain segment of people, to hallucinations, all of which are considered symptoms of psychosis. Why not begin with aggressively treating sleeplessness through the more conventional means of sedatives at night and preparing the proper sleep environment?

Monday, October 15, 2012

Anxiety, giftedness and teen mental health problems

There is an interesting article on giftedness published in 1999  by the Davidson Institute for Talent Development, The impact of giftedness on psychological well-being. This is quite a good article, that makes me look at a possible cause/mislabelling of schizophrenia in a way I had not fully considered before. What got me thinking was a conversation I had this morning with a colleague about his sixteen year old son. I came away from our discussion wondering if schizophrenia and other mental health problems often crop up in adolescence as adjustment and maturity difficulties, as this article hypothesizes. I have thought the same thing, but not directly in relation to the double-edged sword of having a high I.Q. Certainly, in Chris's case, as a child, he easily grasped academic material without putting any of his personality into the process. Perhaps my mistake was thinking that he would start to work, as lots of teenage boys do, when push comes to shove, sometime in the high school years. I should have picked up on the signal that Chris hadn't learned to challenge himself and put himself in win/lose situations at an early age. He missed out on a necessary developmental stage.

I don't want to make this look that any reasonably bright person who has had an easy time of it for a while academically, can fall into the horror of psychosis, but perhaps a key ingredient here is not just being bright, but being acutely sensitive.   According to my colleague, his son has been hospitalized a couple of times due to severe anxiety, has run away from hopitals and home on several occasions, and has had huge difficulties with school attendance. It was only this past year that a teacher suggested that his unwillingness to learn might be related to double-edged gift of a high I.Q. High I.Q. children often don't develop good study habits or a need to perserve, because their intelligence has provided a short term fix when they are young. Anxiety kicks in more and more as the child moves into the teen-age years and must learn better coping skills. At this point, they panic. In some or many cases, the teenager will be given a mental health label, and treated by the mental health system in terms of depression, bipolar, schizophrenia, etc. My friend said that his son was relieved to have his problems cast in a different framework - rather than "crazy" it is his intellect that has been his enemy. It remains to be seen, his father told me, how his son will adapt to a new school with a different pedagogical approach than what he was used to, but so far, he is eager to go to school each morning.

There is a long history of interest in how giftedness affects psychological well-being (Berndt, Kaiser, & Van Aalst, 1982; Eysenck, 1995; Freeman, 1983; Hollingworth, 1942; Parker & Mills, 1996; Ramaseshan, 1957; Reynolds & Bradley, 1983; Richards, 1989; Strang, 1950; Watson, 1965). During the last 50 years, two conflicting views prevailed. The first is that gifted children are generally better adjusted than their nongifted peers; that giftedness protects children from maladjustment. This view hypothesized that the gifted are capable of greater understanding of self and others due to their cognitive capacities and therefore cope better with stress, conflicts and developmental dyssynchrony than their peers. Studies supporting this view report that gifted children demonstrate better adjustment than their average peers when measured on a variety of factors (Baker, 1995; Jacobs, 1971; Kaiser, Berndt, & Stanley, 1987; Neihart, 1991; Ramasheshan, 1957; Scholwinski & Reynols, 1985).

The second view is that gifted children are more at-risk for adjustment problems than their nongifted peers, that giftedness increases a child's vulnerability to adjustment difficulties. Supporters of this view believe that gifted children are at greater risk for emotional and social problems, particularly during adolescence and adulthood. Their hypothesis is that the gifted are more sensitive to interpersonal conflicts and experience greater degrees of alienation and stress than do their peers as a result of their cognitive capacities.

Read the rest here





Monday, October 8, 2012

Crisis postponed

Thanks to everyone who sent me encouraging words and helpful comments. I changed the original title of this post from "crisis averted" to "crisis postponed" because the crisis did, in fact, happen, and there is always the possibility of a new crisis somewhere in the future.  Such is life. Due to the events of the last few days, I'm trying to be more philosophical about the need for Chris to be back on a medication. We had to grab an additional weapon that might stand a chance of stopping his growing anxiety, emotionalism and negative self-image. I've seen in the past where this can lead, and it was the hospital.

Not that I have changed my mind and think that the drugs are safe or particularly effective, but, they can work in a pinch, and often they do work to shut down the symptoms I described above.  (I'll not go into the side effects in this post. We all know them, and the first visible one, even at a low dose, is usually weight gain.) Vigilance is needed on everyone's part  (especially Dr. Stern's) to maintain the drug at the lowest dose for the shortest period while continuing to find other ways of making Chris even more resilient the next time a crisis looms.

I think it's important to point out that a supportive family and intensive psychotherapy didn't stop the crisis from happening, and based on my past experience, won't necessarily prevent it from getting worse. But, with all the holistic interventions Chris has undergone in the past eight years, he's in a much better position to not prolong this latest crisis. Ian and I acted quite business as usual with Chris and did not aggravate the situation by over-reacting.

Chris agreed to the resumption of Abilify, and seemed back to whatever his normal is the following day. He's keeping up with his musical theater practices and finally bought himself a cell phone so he could keep better track of his appointments and his growing group of friends. Ian and I picked up where we left off with him, and are no longer walking around in a state of fear.

Some people may think about the medication, well, what's the big deal? Everybody knows that low dose is best. Well, that's not exactly the way the doctors presented this to me eight years ago. Eight years ago nobody I spoke with mentioned low dose or a single medication only. I had to do my own homework, and was treated like an idiot who didn't understand the problem. Now, lowest possible dose and fewest drugs are on everybody's lips. To get Chris to a low dose of one drug only, took a lot of arguing and willingness to change doctors on my part. Leonard Cohen's crack of light getting in, at least where psychiatry is concerned, is largely thanks to the growing stridency of the psychiatric survivor movement.